Uniting a Global Community: Highlights from the SCN2A & SCN8A International Conference

By Kacie Craig
​Executive Director, The Cute Syndrome Foundation

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In May of this year, I had the honor of representing The Cute Syndrome Foundation at the Third International SCN2A & SCN8A Conference and Family Gathering in Bonn, Germany. This unique event brought together 130 attendees—clinicians, researchers, industry partners, and families—from over 20 countries, all united by a shared mission: to better understand, treat, and support individuals affected by SCN2A and SCN8A-related disorders.
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Organized by SCN2A Germany, SCN2A Italia, and SCN8A Italia, and led scientifically by Drs. Walid Fazeli and Elena Gardella, the conference struck a powerful balance between scientific rigor and deep community connection.

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