The Cute Syndrome Foundation: SCN8A Support, Awareness, and Research
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    • About SCN8A
    • About Us
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  • Families
    • Join our SCN8A Community
    • Connor James Smith Patient Assistance Grant
    • Educational Videos >
      • Annual Gathering Event Recordings
      • Caregiver Talk + Tools
      • Cheers to a Good Life
      • Clinical Trial Readiness Series
      • Family and Researcher Roundtable Series
      • Meaningful Change Series
    • Resources >
      • Caregiver Support
      • Reference Guide
      • Shareable Graphics
    • CUTE Connections Grant
    • SCN8A Warriors
    • Virtual Memory Wall
  • Events
    • Annual SCN8A Clinician, Researcher, and Family Gathering >
      • CUTIES Awards
    • 2025 Virtual Race
    • Monthly Family Programs
    • Researcher Roundtable
    • Awareness Day
    • 2024 Festival of Mark Making
  • Research
    • Clinical Trials
    • Research Grants
    • SCN8A Registry
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Caregiver Talk + Tools

Hosted by Kara Ryska, Life Coach and Host of The Special Needs Mom Podcast
This monthly virtual gathering is designed to support and empower SCN8A caregivers through meaningful connection, practical tools, and open conversation. Each session begins with space to connect and share, followed by a brief teaching or resource selected to meet the emotional and everyday needs of caregivers.

The Evolution of a Special Needs Parent

May 21st, 2025
In this session, Kara shares meaningful insights and empowering strategies to support families in navigating the emotional and mental load of caregiving. This workshop also launches a new ongoing series, where we’ll come together regularly to explore focused topics centered on community connection and actionable coaching.
Evolution of a Special Needs Mom Worksheet
File Size: 267 kb
File Type: pdf
Download File

Mapping Your Overwhelm Cycle

June 18th, 2025
In this session, we’ll walk through what Kara calls the Overwhelm Cycle—a pattern of predictable thoughts, feelings, and reactions that many caregivers experience when stress builds up. Together, we’ll map out what this cycle looks like in your life so you can begin to recognize the signs early. With this awareness, you’ll learn how to gently interrupt the cycle and create more space for clarity, peace, and empowered action. This is about breaking free from the loop of constant overwhelm and finding a new way forward.

Anxiety Management Tools

July 24th, 2025
This month’s Talk + Tools is all about anxiety management strategies designed specifically for caregivers of medically complex children. You’ll walk away with simple, powerful tools that work in real life—tools you can actually use in the middle of a hard day, not just when things are calm. Expect space to connect, breathe, and learn practical ways to support your nervous system—both during the session and long after it ends.
The Calm Toolbox Worksheet
File Size: 3974 kb
File Type: pdf
Download File

Building Your Support Team ​

August 26th, 2025
This monthly virtual gathering is designed to support and empower SCN8A caregivers through meaningful connection, practical tools, and open conversation. Each session begins with space to connect and share, followed by a brief teaching or resource selected to meet the emotional and everyday needs of caregivers.
Caregiver Support Worksheet
File Size: 2 kb
File Type: pdf
Download File

Sustainable Self Care

September 18th, 2025
Caring for others often comes at the expense of caring for ourselves—and over time, that can lead to exhaustion and burnout. In this interactive workshop, we’ll explore practical and sustainable ways to approach self-care as caregivers. Together, we’ll look at how to support our own well-being in the midst of chronic stress and the daily (and nightly) demands of caregiving. You’ll walk away with tools and mindsets to help you create rhythms of rest and renewal—so that you can keep showing up with strength, compassion, and sustainability for the people who need you most.
Sustainable Self Care Menu
File Size: 277 kb
File Type: png
Download File

Grief as a Gateway to Joy

October 22, 2025
This month’s topic is “Turning Grief Into Joy.” Grief changes us—but it doesn’t have to diminish us. In this session, we’ll look at how grief can become a surprising pathway to greater joy, connection, and meaning in the caregiving journey.

Sponsored by
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Past Annual Reports

Past PCDH19 Efforts

​Privacy Policy

The Cute Syndrome Foundation

PO Box 842 Ozark, MO 65721​
The Cute Syndrome is registered as a tax-exempt organization under IRS section 501(c)(3).
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Our tax identification number is: 46-2699066.

© The Cute Syndrome Foundation, All rights reserved
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  • Home
  • About
    • About SCN8A
    • About Us
    • Partner Organizations
    • Volunteers
    • Annual Report
  • Families
    • Join our SCN8A Community
    • Connor James Smith Patient Assistance Grant
    • Educational Videos >
      • Annual Gathering Event Recordings
      • Caregiver Talk + Tools
      • Cheers to a Good Life
      • Clinical Trial Readiness Series
      • Family and Researcher Roundtable Series
      • Meaningful Change Series
    • Resources >
      • Caregiver Support
      • Reference Guide
      • Shareable Graphics
    • CUTE Connections Grant
    • SCN8A Warriors
    • Virtual Memory Wall
  • Events
    • Annual SCN8A Clinician, Researcher, and Family Gathering >
      • CUTIES Awards
    • 2025 Virtual Race
    • Monthly Family Programs
    • Researcher Roundtable
    • Awareness Day
    • 2024 Festival of Mark Making
  • Research
    • Clinical Trials
    • Research Grants
    • SCN8A Registry
  • Donate
  • Contact
  • Blog
  • Shop