Champions for Understanding, Treating, Investigating, and Empowering those with SCN8A
After our first SCN8A Clinician, Researcher, and Family Gathering, held in 2015, we saw a handful of individuals rising to the opportunity to work collaboratively to improve the health and safety of those living with SCN8A. As a result we created the CUTIES, our annual awards for Champions for Understanding, Treating, Investigating, and Empowering those with SCN8A.
2016 Winners
Jessica Jenkins
Dustin's Mom |
Mandy Harris, M.D.
(1975-2017) Pediatric Neurologist, The Riley Hospital for Children at Indiana University Health |
Manoj Patel, Ph.D
Associate Professor at University of Virginia Health System |
2017 Winners
Maggie Nayyar
Leo's Mom |
John Schreiber, M.D.
Neurologist, Children's National Hospital |
Michael Hammer, Ph.D
Shay's Dad, Research Scientist, University of Arizona |
2018 Winners
Dianely Cabrera
Max's Mom, TCSF Volunteer |
JP Johnson
VP Biology, Xenon Pharmaceuticals |
2019 Winners
Daniel Braz
Rafa's Dad, Ajude o Rafa Founder |
Katrine Johannesen, M.D.
The Danish Epilepsy Center |
Miriam Meisler, Ph.D
Professor of Human Genetics and Professor of Neurology, University of Michigan |
2020 Winners
Cinzia Scarcelli
Aron's Mom, SCN8A Italia Founder |
Kacie Craig
Stella's Mom, TCSF Volunteer |
Megan Varner
Lily's Sister, TCSF Volunteer |
2021 Winners
Ben Clay
(1978-2022) Tilly's Dad, SCN8A UK & Ireland Founder |
Eric Wengert, Ph.D.
Postdoctoral Fellow in the Lab of Dr. Ethan M. Goldberg, Children's Hospital of Philadelphia |
2022 Winner
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Hillary Savoie, Ph.D.
Founder and President, The Cute Syndrome Foundation |
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Past Annual Reports
Past PCDH19 Efforts Privacy Policy The Cute Syndrome Foundation PO Box 842 Ozark, MO 65721 |
The Cute Syndrome is registered as a tax-exempt organization under IRS section 501(c)(3).
Our tax identification number is: 46-2699066. © The Cute Syndrome Foundation, All rights reserved
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