The Cute Syndrome Foundation: SCN8A Epilepsy Support, Awareness, and Research
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      • CUTIES Awards
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      • Video Page
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      • Video Page
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      • Day 1 Agenda
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CUTIES Award Winners

Champions for Understanding, Treating, Investigating, and Empowering those with SCN8A

After our first SCN8A Clinician, Researcher, and Family Gathering, held in 2015, we saw a handful of individuals rising to the opportunity to work collaboratively to improve the health and safety of those living with SCN8A. As a result we created the CUTIES, our annual awards for Champions for Understanding, Treating, Investigating, and Empowering those with SCN8A. 
​2016  |  2017  |  2018  |  2019  |  2020  |  2021

 

2016 Winners

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 Jessica Jenkins 
Dustin's Mom
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Mandy Harris, M.D.
Pediatric Neurologist, The Riley Hospital for Children at Indiana University Health
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Manoj Patel, Ph.D
Associate Professor at University of Virginia Health System

 

​2017 Winners

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Maggie Nayyar
Leo's Mom
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John Schreiber, M.D.
Neurologist, Children's National Hospital
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Michael Hammer, Ph.D
Research Scientist, University of Arizona, Shay's Dad

 

​2018 Winners

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Dianely Cabrera
Max's Mom, TCSF Volunteer
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JP Johnson
VP Biology, Xenon Pharmaceuticals

 

​2019 Winners

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Daniel Braz
Rafa's Dad, Ajude o Rafa Founder
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Katrine Johannesen, M.D.
The Danish Epilepsy Center
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Miriam Meisler, Ph.D
Professor of Human Genetics and Professor of Neurology, University of Michigan

 

​2020 Winners

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Cinzia Scarcelli
Aron's Mom, SCN8A Italia Founder
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Kacie Craig
Stella's Mom, TCSF Volunteer
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Megan Varner
Lily's Sister, TCSF Volunteer

 

​2021 Winners

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Ben Clay
Tilly's Dad, SCN8A UK & Ireland Founder
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Eric Wengert, Ph.D.
​Postdoctoral Fellow in the Lab of Dr. Ethan M. Goldberg, Children's Hospital of Philadelphia

Past Annual Reports

Past PCDH19 Efforts

​Privacy Policy

​Annual SCN8A Family Gathering Portal
​
The Cute Syndrome is registered as a tax-exempt organization under IRS section 501(c)(3).
​

​Our tax identification number is: 46-2699066.

© The Cute Syndrome Foundation, All rights reserved
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  • Home
  • About
    • About SCN8A
    • About Us
    • Partner Organizations
    • Volunteers
    • Sponsors
    • 2020 Annual Report
  • Families
    • Caregiver Support
    • Join our SCN8A Community
    • SCN8A Warriors
    • Reference Guide
    • Resources
    • Shareable Graphics
  • Events
    • Annual SCN8A Clinician, Researcher, and Family Gathering >
      • CUTIES Awards
    • Researcher Roundtable
    • Awareness Day
  • Research
    • Research Grants
    • SCN8A Registry
    • Clinical Trials
  • Donate
    • How You Can Help
    • SCN8A Awareness Gifts
  • Contact
  • Gathering Family Portal
    • 2021 Annual Gathering >
      • Video Page
    • 2020 Annual Gathering >
      • Video Page
    • 2019 Annual Gathering >
      • Day 1 Agenda
      • Day 2 Agenda
      • Presentations
      • Speakers
      • Video Page
    • SCN8A Lexicon
  • Blog
  • Shop