The Cute Syndrome Foundation: SCN8A Support, Awareness, and Research
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    • Connor James Smith Patient Assistance Grant
    • Educational Videos >
      • Annual Gathering Event Recordings
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      • Clinical Trial Readiness Series
      • Family and Researcher Roundtable Series
      • Meaningful Change Series
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      • Reference Guide
      • Shareable Graphics
    • CUTE Connections Grant
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    • Annual SCN8A Clinician, Researcher, and Family Gathering >
      • CUTIES Awards
      • Speakers
    • Researcher Roundtable
    • Awareness Day
    • Layla: The Festival of Mark Making
    • Virtual 5k
  • Research
    • Clinical Trials
    • Research Grants
    • SCN8A Registry
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CUTIES Award Winners

Champions for Understanding, Treating, Investigating, and Empowering those with SCN8A

After our first SCN8A Clinician, Researcher, and Family Gathering, held in 2015, we saw a handful of individuals rising to the opportunity to work collaboratively to improve the health and safety of those living with SCN8A. As a result we created the CUTIES, our annual awards for Champions for Understanding, Treating, Investigating, and Empowering those with SCN8A. 
​2016  |  2017  |  2018  |  2019  |  2020  |  2021  |  2022  |  2023 |  2024

 

2016 Winners

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 Jessica Jenkins 
Dustin's Mom
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Mandy Harris, M.D.
(1975-2017)
Pediatric Neurologist, The Riley Hospital for Children at Indiana University Health
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Manoj Patel, Ph.D
Associate Professor at University of Virginia Health System

 

​2017 Winners

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Maggie Nayyar
Leo's Mom
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John Schreiber, M.D.
Neurologist, Children's National Hospital
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Michael Hammer, Ph.D
Shay's Dad, Research Scientist, University of Arizona

 

​2018 Winners

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Dianely Cabrera
Max's Mom, TCSF Volunteer
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JP Johnson
VP Biology, Xenon Pharmaceuticals

 

​2019 Winners

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Daniel Braz
Rafa's Dad, Ajude o Rafa Founder
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Katrine Johannesen, M.D.
The Danish Epilepsy Center
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Miriam Meisler, Ph.D
Professor of Human Genetics and Professor of Neurology, University of Michigan

 

​2020 Winners

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Cinzia Scarcelli
Aron's Mom, SCN8A Italia Founder
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Kacie Craig
Stella's Mom, TCSF Volunteer
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Megan Varner
Lily's Sister, TCSF Volunteer

 

​2021 Winners

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Ben Clay
(1978-2022)
Tilly's Dad, SCN8A UK & Ireland Founder
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Eric Wengert, Ph.D.
​Postdoctoral Fellow in the Lab of Dr. Ethan M. Goldberg, Children's Hospital of Philadelphia

 

2022 Winner

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Hillary Savoie, Ph.D.
Founder and President, The Cute Syndrome Foundation and Esme's Mom

 

2023 Winners

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Shawn and Krista Smith
Connor James Smith Patient Assistance Grant Founders and Connor's Parents
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Scott Perry, M.D.
Medical Director of Neurology, Cook Children's
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Madeleine Oudin, Ph.D.
Assistant Professor, Tufts University and Margot's Mom

 

2024 Winners

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Kelly Johnston
Mae's Mom, TCSF Volunteer
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Roberto Previtali, M.D.
Child Neurologist and Psychiatrist, Vittore Buzzi Children's Hospital, Danish Epilepsy Center-Filadelfia, University of Southern Denmark
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Dennis Lal, Ph.D.
Associate Professor and Director of the Center for Neurogenetics, UTHealth Houston

Past Annual Reports

Past PCDH19 Efforts

​Privacy Policy

The Cute Syndrome Foundation

PO Box 842 Ozark, MO 65721​
The Cute Syndrome is registered as a tax-exempt organization under IRS section 501(c)(3).
​
Our tax identification number is: 46-2699066.

© The Cute Syndrome Foundation, All rights reserved
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  • Home
  • About
    • About SCN8A
    • About Us
    • Partner Organizations
    • Volunteers
    • Annual Report
  • Families
    • Join our SCN8A Community
    • Connor James Smith Patient Assistance Grant
    • Educational Videos >
      • Annual Gathering Event Recordings
      • Cheers to a Good Life
      • Clinical Trial Readiness Series
      • Family and Researcher Roundtable Series
      • Meaningful Change Series
    • Resources >
      • Caregiver Support
      • Reference Guide
      • Shareable Graphics
    • CUTE Connections Grant
    • SCN8A Warriors
    • Virtual Memory Wall
  • Events
    • Annual SCN8A Clinician, Researcher, and Family Gathering >
      • CUTIES Awards
      • Speakers
    • Researcher Roundtable
    • Awareness Day
    • Layla: The Festival of Mark Making
    • Virtual 5k
  • Research
    • Clinical Trials
    • Research Grants
    • SCN8A Registry
  • Donate
  • Contact
  • Blog
  • Shop