November Programs

Family & Researcher Roundtable Session 4:
SUDEP and Seizure Detection: TCSF + Danny Did Foundation

Wednesday, November 5th at 5pm Eastern Time
Join TCSF and the Danny Did Foundation for a discussion on SUDEP (Sudden Unexpected Death in Epilepsy) and seizure detection devices. Learn how the Danny Did Foundation began, explore available alerting technologies, and hear about their grant program that helps families access these important safety tools.

Coffee & Chitchat Club

Friday, November 14th at 12pm Eastern Time
Take a break and join us for our monthly Chaos, Coffee & Chitchat Club! This hour-long, volunteer-led meetup is designed for SCN8A caregivers to come exactly as you are—no structure, no agenda, just space to connect with others who truly understand. Whether you’re juggling appointments, sipping coffee in pajamas, or just need to be around people who “get it,” this is your time.
Pop in for a few minutes or stay the full hour—we’d love to see you. ​

Family & Researcher Roundtable Session 5:
Movement Matters: Understanding Movement Disorders in SCN8A

Tuesday, November 18 at 6pm Eastern Time
Join TCSF and Dr. Sunanjay Bajaj, Resident Physician in Neurology at UTHealth Houston, for an overview of movement disorders in SCN8A patients. He will discuss key features such as chorea, dystonia, ataxia, myoclonus, eye movement abnormalities, gait challenges, and hypotonia, helping families better understand how SCN8A affects movement.

Bereavement Support Group

(for parents who have lost a child to SCN8A)
Thursday, November 20th at 12pm Eastern Time
You are invited to join our support group for bereaved parents as we come together to share, listen, and support one another. Together, we will explore ways to honor our children, care for ourselves, and find comfort in community. No pressure to speak—just come as you are.

TCSF Virtual Book Club

Monday, November 24th at 8pm Eastern
Join the TCSF Book Club for an engaging discussion on our latest book selection! Whether you’re an avid reader or just looking to connect with the SCN8A community, this is a great way to unwind and share thoughts. Check the support group for the latest book announcements and discussion topics!

If you’d like help obtaining a copy, you can request your preferred format (electronic, paper, or audio) here:  https://form.jotform.com/250905137276054

Event Recordings

Monthly Caregiver & Kids Bingo

Our monthly Wellness Bingo is a playful way to explore small, effective ways to reduce stress and care for yourself. 
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Caregiver Challenge: Complete the activities to get a BINGO (five spaces in a row—horizontal, vertical, or diagonal) and email your card to [email protected] by October 1st, 2025 to be entered into a $50 gift card drawing of your choice!

Kids Challenge: We’re also continuing the fun for kids with two activity-based BINGO card options so every child can join in. Any child who completes a BINGO and sends it to [email protected] by October 1st, 2025 will be entered into a separate $50 gift card drawing just for kids!

2025 Social-Emotional Support Program Sponsors