June 2026

Coffee & Chitchat Club

Friday, June 5 at 12pm Eastern Time
Take a break and join us for our monthly Chaos, Coffee & Chitchat Club! This hour-long, volunteer-led meetup is designed for SCN8A caregivers to come exactly as you are—no structure, no agenda, just space to connect with others who truly understand. Whether you’re juggling appointments, sipping coffee in pajamas, or just need to be around people who “get it,” this is your time.
Pop in for a few minutes or stay the full hour—we’d love to see you. ​​

Bereavement Support Group

Thursday, June 18 at 12pm Eastern
For parents who have lost a child to SCN8A-related causes. June often brings many-layered emotions for bereaved families , from honoring fathers and father figures on Father’s Day to adjusting to the loss of school-year routine, structure, and familiar support as summer begins. This gathering is a safe space to share, listen, and connect with others who understand. No pressure to speak—just come as you are.

Meaningful Change Series Session 3 | Info Coming Soon

May 28 at 12pm EST​

Event Recordings

2026 Social-Emotional Support Program Sponsors