January

Bereavement Support Group

(for parents who have lost a child to SCN8A)
Thursday, January 29th at 12pm Eastern Time
As the new year begins, we warmly invite you to our SCN8A Parent Bereavement Support Meeting. This is a safe, understanding space to remember, reflect, and connect with others who truly understand. No expectations—just support, compassion, and community. You are not alone. 

February

Coffee & Chitchat Club

Friday, February 13th at 12pm Eastern Time
Take a break and join us for our monthly Chaos, Coffee & Chitchat Club! This hour-long, volunteer-led meetup is designed for SCN8A caregivers to come exactly as you are—no structure, no agenda, just space to connect with others who truly understand. Whether you’re juggling appointments, sipping coffee in pajamas, or just need to be around people who “get it,” this is your time.
Pop in for a few minutes or stay the full hour—we’d love to see you. ​

TCSF Virtual Book Club

Monday, February 23rd at 8pm Eastern
Join the TCSF Book Club for an engaging discussion on our latest book selection! Whether you’re an avid reader or just looking to connect with the SCN8A community, this is a great way to unwind and share thoughts. Check the support group for the latest book announcements and discussion topics!

If you’d like help obtaining a copy, you can request your preferred format (electronic, paper, or audio) here:  https://form.jotform.com/250905137276054

KESETT Research Study Webinar (Hosted by University of Virginia)

Tuesday, February 24th at 3pm Eastern Time
Join us by Zoom on February 24th from 3:00 - 4:00pm Eastern Time to learn more about the KESETT research study! KESETT is a new status epilepticus emergency research study that is starting in 2026 at over 60 hospitals around the United States. 

The KESETT study is being performed so that doctors can know the best medications to use in the emergency department to treat people with prolonged seizures. KESETT will compare the anti-seizure medication most commonly used in those with prolonged seizures, called levetiracetam (also known as Keppra), with a combination of levetiracetam and another anti-seizure medication, called ketamine.

Adults and children (age 1 and older) who are treated at participating emergency departments for prolonged seizures that have not responded to benzodiazepines may be entered into the study. 

We invite you to hear more about the study, ask questions, and learn how you can opt-out of participating. You can also visit our website to learn more and find the participating center closest to you: https://sites.uab.edu/kesett/

Event Recordings

2026 Social-Emotional Support Program Sponsors