The Cute Syndrome Foundation Is Currently Funding SCN8A Epilepsy Research!
It wouldn't be surprising if you have never heard of SCN8A Epilepsy. It is a rare disorder, caused by genetic mutations in the gene SCN8A, and it is still in the early stages of being diagnosed and understood. Our team at The Cute Syndrome Foundation is working hard to help bring SCN8A into the light, to fund the dedicated and talented researchers working to better understand it, and to support the families who are affected by this disorder.
You are part of that mission--your donations, volunteer time, and social media support are essential to our momentum.
With our partner organizations we have helped to fund a series of SCN8A projects including funding for Dr. Michael Hammer's SCN8A Registry, Dr. Miriam Meisler's SCN8A research at the University of Michigan, our SCN8A Clinician Reference Guide, and our annual SCN8A Clinician, Researcher, and Family Gathering.
In previous years The Cute Syndome Foundation has made amazing progress with funding PCDH19 research. Read more about the PCDH19 research we are funding.
The Cute Syndrome is registered as a tax-except organization under IRS section 501(c)(3). Our tax identification number is: 46-2699066