The 2019 SCN8A Research Roundtable took place in Chapel Hill, North Carolina in July. This event brought together a select group of key SCN8A professionals for an intensive strategic planning meeting. Over a day and a half of meetings, participants focused on the state of SCN8A research, collaborate on grant efforts, and outlined next steps necessary to translate the scientific understanding of SCN8A into improved treatments and outcomes for individuals living with SCN8A. We believe the collaborative work between family advocacy groups, clinicians, researchers, and industry partners in driving research forward is key.
While TCSF holds an annual SCN8A Clinician, Researcher, and Family Gathering, in conjunction with the American Epilepsy Society Meeting in December, it has become clear that having these researchers meet independently for an extended SCN8A-focused meeting is the best way to drive innovation and collaboration.