Clinical TrialsParticipating in clinical trials is an important way to help accelerate therapeutic development. Stay up to date about current and future opportunities below.
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Annual GatheringConnect in person with other SCN8A families and learn about current research by attending the Annual SCN8A Clinician, Researcher, and Family Gathering each December.
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ResourcesHaving a new diagnosis can be overwhelming. We have compiled a list of many different resources to help you find the equipment and support you might need.
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TCSF has an updated logo!In honor of our 11th anniversary, The Cute Syndrome Foundation has removed the word “epilepsy” from the SCN8A heart in our logo to recognize the diversity within our community and our evolving understanding of SCN8A mutations. While it may seem like a subtle change, it is an important one. Learn more on our blog.
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Shedding Light on SCN8A: 8th Annual International SCN8A Awareness Day
February 9, 2024, marked an important occasion for the global community, particularly for those whose lives have been touched by SCN8A, a rare disorder that often operates in the shadows. International SCN8A Awareness Day, observed under this year’s theme #IfYouOnlyKnew, served as a poignant reminder of the challenges faced by individuals affected by this condition, which impacts less than 1,000 people worldwide... |
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