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The Cute Syndrome Foundation Is Funding PCDH19 Epilepsy and SCN8A Epilepsy Research!
It wouldn't be surprising if you have never heard of PCDH19 Epilepsy or SCN8A Epilepsy. These rare disorders, which are both caused by genetic mutations, are just in the early stages of being diagnosed and understood. Our team at The Cute Syndrome Foundation is working hard to help bring these disorders into the light, to fund the dedicated and talented researchers working to better understand them, and to support the families who are affected by these disorders.
You are part of that mission--your donations, volunteer time, and social media support are essential to our momentum.
In two years TCSF has made amazing progress with funding PCDH19 research. We have raised more than $120,000 for PCDH19 Epilepsy research and awareness. Read more about the PCDH19 research we are funding.
Additionally, with our partners we have helped raise over $45,000 for SCN8A Research, helping to fund $20,000 to fund an SCN8A Registry and promising research at the University of Michigan.
Does your child have an SCN8A mutation? Join our support group by emailing us here.
The Cute Syndrome is registered as a tax-except organization under IRS section 501(c)(3). Our tax identification number is: 46-2699066