The Cute Syndrome Foundation: SCN8A Support, Awareness, and Research
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    • About SCN8A
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    • Educational Videos >
      • Annual Gathering Event Recordings
      • Cheers to a Good Life
      • Clinical Trial Readiness Series
      • Family and Researcher Roundtable Series
      • Meaningful Change Series
    • Resources >
      • Caregiver Support
      • Reference Guide
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  • Events
    • Annual SCN8A Clinician, Researcher, and Family Gathering >
      • CUTIES Awards
    • 2025 Virtual Race
    • Monthly Family Programs
    • Researcher Roundtable
    • Awareness Day
    • 2024 Festival of Mark Making
  • Research
    • Clinical Trials
    • Research Grants
    • SCN8A Registry
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SCN8A Awareness Day

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BUY AN AWARENESS DAY SHIRT

SCN8A Epilepsy is a rare disorder that is known to affect less than 1,000 individuals worldwide. It can cause severe epilepsy, developmental delay, and other medical challenges.
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​The gene SCN8A was isolated in humans by Michael Hammer, PhD, a geneticist who found the gene in his own daughter, Shay, soon after her death in 2011.

​To honor Shay and all of those with SCN8A, The Cute Syndrome Foundation helped launch SCN8A Awareness Day on February 9th, Shay Hammer's birthday.

Visit our Youtube channel to view more SCN8A Awareness Day videos.

Visit the SCN8A Awareness Day website to learn more and find resources for spreading awareness.


Past Annual Reports

Past PCDH19 Efforts

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The Cute Syndrome Foundation

PO Box 842 Ozark, MO 65721​
The Cute Syndrome is registered as a tax-exempt organization under IRS section 501(c)(3).
​
Our tax identification number is: 46-2699066.

© The Cute Syndrome Foundation, All rights reserved
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  • Home
  • About
    • About SCN8A
    • About Us
    • Partner Organizations
    • Volunteers
    • Annual Report
  • Families
    • Join our SCN8A Community
    • Connor James Smith Patient Assistance Grant
    • Educational Videos >
      • Annual Gathering Event Recordings
      • Cheers to a Good Life
      • Clinical Trial Readiness Series
      • Family and Researcher Roundtable Series
      • Meaningful Change Series
    • Resources >
      • Caregiver Support
      • Reference Guide
      • Shareable Graphics
    • CUTE Connections Grant
    • SCN8A Warriors
    • Virtual Memory Wall
  • Events
    • Annual SCN8A Clinician, Researcher, and Family Gathering >
      • CUTIES Awards
    • 2025 Virtual Race
    • Monthly Family Programs
    • Researcher Roundtable
    • Awareness Day
    • 2024 Festival of Mark Making
  • Research
    • Clinical Trials
    • Research Grants
    • SCN8A Registry
  • Donate
  • Contact
  • Blog
  • Shop