SCN8A Epilepsy is a rare disorder that is known to affect around ~550 individuals worldwide. It can cause severe epilepsy, developmental delay, and other medical challenges.
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​The gene SCN8A was isolated in humans by Michael Hammer, PhD, a geneticist who found the gene in his own daughter, Shay, soon after her death in 2011.

​To honor Shay and all of those with SCN8A, The Cute Syndrome Foundation helped launch SCN8A Awareness Day on February 9th, Shay Hammer's birthday.

Visit our Youtube channel to view more SCN8A Awareness Day videos.

Visit the SCN8A Epilepsy Awareness Day website to learn more.

Awareness Day Profile Photos
Facebook no longer supports profile frames, however we have created Canva templates that you can add your own photo to and upload to Facebook. Canva accounts are free to create. To make your profile photo:
  1. Open the template
  2. Click "uploads" on the left and upload your photo
  3. Drag it into the Awareness Day frame you want to use
  4. Click "share", then "download"
  5. Select the page number of the frame you used
  6. Click "download"
  7. Upload your new profile photo to Facebook!