SCN8A Epilepsy is a rare disorder that is known to affect around 260 individuals worldwide--causing severe epilepsy, developmental delay, and other medical challenges.
The gene SCN8A was isolated in humans by Michael Hammer, PhD, a geneticist who found the gene in his own daughter, Shay, soon after her death in 2011.
To honor Shay and all of those with SCN8A, The Cute Syndrome Foundation helped launch SCN8A Awareness Day on February 9th, Shay Hammer's birthday.
The Cute Syndrome is registered as a tax-exempt organization under IRS section 501(c)(3).
Our tax identification number is: 46-2699066.
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