Clinical TrialsParticipating in clinical trials is an important way to help accelerate therapeutic development. Stay up to date about current and future opportunities below.
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Annual GatheringConnect in person with other SCN8A families and learn about current research by attending the Annual SCN8A Clinician, Researcher, and Family Gathering each December.
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ResourcesHaving a new diagnosis can be overwhelming. We have compiled a list of many different resources to help you find the equipment and support you might need.
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Today is International SCN8A Awareness Day!Join us today, February 9th, to celebrate International SCN8A Awareness Day and stand with families affected by SCN8A. Together, we can raise awareness and support the search for better treatments.
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Shedding Light on SCN8A: 8th Annual International SCN8A Awareness Day
February 9, 2024, marked an important occasion for the global community, particularly for those whose lives have been touched by SCN8A, a rare disorder that often operates in the shadows. International SCN8A Awareness Day, observed under this year’s theme #IfYouOnlyKnew, served as a poignant reminder of the challenges faced by individuals affected by this condition, which impacts less than 1,000 people worldwide... |
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