Clinical TrialsParticipating in clinical trials is an important way to help accelerate therapeutic development. Stay up to date about current and future opportunities below.
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Annual GatheringConnect in person with other SCN8A families and learn about current research by attending the Annual SCN8A Clinician, Researcher, and Family Gathering each December.
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ResourcesHaving a new diagnosis can be overwhelming. We have compiled a list of many different resources to help you find the equipment and support you might need.
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Family and Researcher RoundtableHaving made substantial strides in preparing the SCN8A community for two clinical trials over the past three years, TCSF shifted its fall education series from Clinical Trial Readiness to a dynamic Family and Researcher Roundtable series, offering a broader scope of discussions on research and quality-of-life topics to ensure our community remains well-informed and actively engaged in the care and treatment of their loved ones with SCN8A.
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Cute Connections 2023: SCN8A Families Find Fun, Fellowship, and Respite
As the pandemic began to settle, TCSF realized that providing year-round virtual activities is still imperative to our families, but it was now time to focus on engaging in more face-to-face fellowship activities. In early 2023, TCSF announced the CUTE Connections grant, and immediately families jumped on the opportunity to organize regional meet-ups... |
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