Clinical TrialsParticipating in clinical trials is an important way to help accelerate therapeutic development. Stay up to date about current and future opportunities below.
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Annual GatheringConnect in person with other SCN8A families and learn about current research by attending the Annual SCN8A Clinician, Researcher, and Family Gathering each December.
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ResourcesHaving a new diagnosis can be overwhelming. We have compiled a list of many different resources to help you find the equipment and support you might need.
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2023 SCN8A Grant AwardedSCN8A seed grant awarded to Chris Dulla, PhD, and Madeleine Oudin, PhD, of Tufts University, along with Chris Burge, PhD, of MIT for “Validating a new mouse model of SCN8A infantile spasms and epilepsy”.
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Spreading Joy: Announcing the Awarding of Six Connor James Smith Patient Assistance Grants Totalling over $15,000
In many cases, insurance covers the bare minimum for patients with rare genetic disorders like SCN8A, which leaves families footing the bill for necessary medical equipment, therapy devices, educational aids, medications, outpatient therapy costs, home and vehicle modifications, etc. The list is a mile long and the expenses add up quickly... |
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