Clinical TrialsParticipating in clinical trials is an important way to help accelerate therapeutic development. Stay up to date about current and future opportunities below.
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Annual GatheringConnect in person with other SCN8A families and learn about current research by attending the Annual SCN8A Clinician, Researcher, and Family Gathering each December.
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ResourcesHaving a new diagnosis can be overwhelming. We have compiled a list of many different resources to help you find the equipment and support you might need.
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International SCN8A Awareness Day!On February 9th we celebrated International SCN8A Awareness Day. This year, our theme was two simple, short, yet powerful words – “I Am.” No two SCN8A journeys are identical, so we invited SCN8A warriors and their families to fill in the blank and tell their stories. We received over 40 submissions from families around the world to share on social media. Click the link below to view our 2025 SCN8A Awareness Day video!
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A Decade of Progress: Highlights from the 10th Annual SCN8A Gathering
The Cute Syndrome Foundation’s 10th Annual SCN8A Clinician, Researcher, and Family Gathering was a powerful and inspiring event, bringing together families, researchers, and clinicians to foster connection, education, and hope. Held in Los Angeles, CA, this milestone gathering not only celebrated a decade of progress but also reinforced our collective commitment... |
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