The Cute Syndrome Foundation: SCN8A Support, Awareness, and Research
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    • About SCN8A
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  • Families
    • Join our SCN8A Community
    • Connor James Smith Patient Assistance Grant
    • Educational Videos >
      • Annual Gathering Event Recordings
      • Cheers to a Good Life
      • Clinical Trial Readiness Series
      • Family and Researcher Roundtable Series
      • Meaningful Change Series
    • Resources >
      • Caregiver Support
      • Reference Guide
      • Shareable Graphics
    • CUTE Connections Grant
    • SCN8A Warriors
    • Virtual Memory Wall
  • Events
    • Annual SCN8A Clinician, Researcher, and Family Gathering >
      • CUTIES Awards
      • Speakers
    • Researcher Roundtable
    • Awareness Day
    • Layla: The Festival of Mark Making
    • Virtual 5k
  • Research
    • Clinical Trials
    • Research Grants
    • SCN8A Registry
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Memory Wall

Welcome to our virtual memory wall, a space dedicated to honoring and remembering the lives of individuals who bravely faced SCN8A-related challenges. May it offer support, remembrance, and solace.

Shay Hammer

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Rebecca Owens

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Dustin Jenkins Eid

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Joshua Orian LaBouve

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Nell Honore

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James Clurey

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Jacob Falls

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Bruno Waegner

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Jackson Nicklen

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Emerson Mascherino

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Tristan Tong

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Easton Brunty

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Will Ramirez

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Declan Bell

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Angelo Ibrahim

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Hafsa Mahmud

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Laurel Cuthbert

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Magna Jorgensen 

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Julia Porter

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Augustin Carignan

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Wassim Haddad

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Aneurin Hamilton

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Eric Schwartz

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Hayden Simcox

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Valentine Knee

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Thodoris Panagiotis Ninios

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Mika Krengel

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Varya Osipenko

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Danielle Magerfleisch

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Jameson Fuller

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Brayden Ortiz

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Camryn Stockford

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Nora Raemy

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Shirley Titus

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Steini Gústafsson

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Carson Prisco

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Johnny McDonald III

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Everleigh Matteoli

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Kristopher Angel Zelaya

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Nathan Bovell

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Peter Przygoda

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Leah McClellan

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Katharina Santl

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Kaitlyn Delgado

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Mateo Mascorro

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Saverio Borghi

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Maria Carulla

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Danielle Rapson

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Connor Smith

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Joslyn Lira

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Oliver Aichorn

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Cameron Singleton

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Holly Ramsey

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Regina Villa Gonzalez

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Marlena Glunk

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Jaimison Hall

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Layla Al-Badri Loucopoulos

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Lucy Hayward

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Louise Antonela Mendes Oiveira

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Berat Eymen Besoluk

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Nathan Derkx Romano

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Ivy Atwell

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Mae Johnston

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Weston Walker

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Mateo Mata

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Amadeusz Paszczynska

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Lara Dab

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Livia Picariello Rametta

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Rhavi Alves

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Bereaved families can contact Karen Varner to have their loved one added to the memory wall.
Past Annual Reports

Past PCDH19 Efforts

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The Cute Syndrome Foundation

PO Box 842 Ozark, MO 65721​
The Cute Syndrome is registered as a tax-exempt organization under IRS section 501(c)(3).
​
Our tax identification number is: 46-2699066.

© The Cute Syndrome Foundation, All rights reserved
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  • Home
  • About
    • About SCN8A
    • About Us
    • Partner Organizations
    • Volunteers
    • Annual Report
  • Families
    • Join our SCN8A Community
    • Connor James Smith Patient Assistance Grant
    • Educational Videos >
      • Annual Gathering Event Recordings
      • Cheers to a Good Life
      • Clinical Trial Readiness Series
      • Family and Researcher Roundtable Series
      • Meaningful Change Series
    • Resources >
      • Caregiver Support
      • Reference Guide
      • Shareable Graphics
    • CUTE Connections Grant
    • SCN8A Warriors
    • Virtual Memory Wall
  • Events
    • Annual SCN8A Clinician, Researcher, and Family Gathering >
      • CUTIES Awards
      • Speakers
    • Researcher Roundtable
    • Awareness Day
    • Layla: The Festival of Mark Making
    • Virtual 5k
  • Research
    • Clinical Trials
    • Research Grants
    • SCN8A Registry
  • Donate
  • Contact
  • Blog
  • Shop