The Cute Syndrome Foundation: SCN8A Support, Awareness, and Research
  • Home
  • About
    • About SCN8A
    • About Us
    • Partner Organizations
    • Volunteers
    • Annual Report
  • Families
    • Join our SCN8A Community
    • Connor James Smith Patient Assistance Grant
    • Educational Videos >
      • Annual Gathering Event Recordings
      • Cheers to a Good Life
      • Clinical Trial Readiness Series
      • Family and Researcher Roundtable Series
      • Meaningful Change Series
    • Resources >
      • Caregiver Support
      • Reference Guide
      • Shareable Graphics
    • CUTE Connections Grant
    • SCN8A Warriors
    • Virtual Memory Wall
  • Events
    • Annual SCN8A Clinician, Researcher, and Family Gathering >
      • CUTIES Awards
    • 2025 Virtual Race
    • Monthly Family Programs
    • Researcher Roundtable
    • Awareness Day
    • 2024 Festival of Mark Making
  • Research
    • Clinical Trials
    • Research Grants
    • SCN8A Registry
  • Donate
  • Contact
  • Blog
  • Shop

How You Can Help

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Since our founding in 2013, The Cute Syndrome Foundation has remained steadfast in our mission to raise awareness of SCN8A, support families, and advance critical research that paves the way toward better treatments. Thanks to the generosity of donors like you, we’ve helped drive groundbreaking SCN8A research, championed the development of clinical trials, and built a supportive and informed community. ​

Make a Financial Donation

Processing fees and tips to GiveButter are optional and can be adjusted to $0. Processing fees cover our credit card processing costs, so more of your donation goes to our mission. Tips go directly to GiveButter to keep their fundraising platform free for nonprofits like TCSF.

Donate by Check
Make checks payable to The Cute Syndrome Foundation
PO Box 842
​Ozark, MO 65721
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Donations are tax deductible as allowed by law. Our tax identification number is 46-2699066.
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Donate Stocks
We now accept stock donations via StockDonator.com. 
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MAKE A STOCK DONATION

Other Ways to Help

Follow Us on Social Media

Learn about the families affected by SCN8A, and stay up to date on our events and progress by following us on Facebook, Instagram, and Youtube.

Create a Facebook Fundraiser

Creating a birthday fundraiser (or just because!) on Facebook is a great way to raise awareness and funds for TCSF. Just click the button below to begin! You can also sign into your account, select "fundraisers", click "select non-profit", and search for The Cute Syndrome Foundation. Then add a goal, timeline, and info about why you are raising money. We will be mailed a check automatically after the fundraiser ends.
CREATE A FACEBOOK FUNDRAISER

Shop Through iGive.com

Shop at over 2,000 stores through iGive.com or the iGive app and a percentage of your purchase will be donated to The Cute Syndrome Foundation! Create a free account and select The Cute Syndrome Foundation as your cause to get started.
SIGN UP FOR IGIVE

Purchase TCSF Merchandise

We currently offer three different ways to purchase merchandise: our Annual Gathering t-shirt campaign in the Fall; our Annual Awareness Day t-shirt campaign in February and our online TCSF shop that is open year round. A portion of proceeds from each sale comes back to TCSF. Follow us on social media to see our Annual Gathering and Awareness day shirt sales.

Minted Fundraising Code

Minted’s Fundraising Program gives non-profits the opportunity to raise funds simply by shopping for cards and stationary at Minted.com. When you use our promo code FUNDRAISECSF, you'll recieve 20% off your order (exclusions apply) and 10% of the net sales from your purchase will be donated back to The Cute Syndrome Foundation at the end of the year!

Volunteer

It doesn't matter whether you have experience as a non-profit volunteer, plenty of time to spare, or a specific set of skills. As long as you've got a desire to help, we'll find a way to get you involved! Contact Shelley for more information.

Spread Awareness

Please help us reach as many people as possible by sharing our information with friends, family, clinicians, researchers—anyone you can! Also, take some time to learn about SCN8A and Epilepsy first aid, and share what you learn!
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We have various graphics available to make sharing easy, or you can share our posts on Facebook, Instagram, or LinkedIn. Sharing about TCSF and SCN8A on social media is one of the easiest ways to spread awareness to a large audience.

Past Annual Reports

Past PCDH19 Efforts

​Privacy Policy

The Cute Syndrome Foundation

PO Box 842 Ozark, MO 65721​
The Cute Syndrome is registered as a tax-exempt organization under IRS section 501(c)(3).
​
Our tax identification number is: 46-2699066.

© The Cute Syndrome Foundation, All rights reserved
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  • Home
  • About
    • About SCN8A
    • About Us
    • Partner Organizations
    • Volunteers
    • Annual Report
  • Families
    • Join our SCN8A Community
    • Connor James Smith Patient Assistance Grant
    • Educational Videos >
      • Annual Gathering Event Recordings
      • Cheers to a Good Life
      • Clinical Trial Readiness Series
      • Family and Researcher Roundtable Series
      • Meaningful Change Series
    • Resources >
      • Caregiver Support
      • Reference Guide
      • Shareable Graphics
    • CUTE Connections Grant
    • SCN8A Warriors
    • Virtual Memory Wall
  • Events
    • Annual SCN8A Clinician, Researcher, and Family Gathering >
      • CUTIES Awards
    • 2025 Virtual Race
    • Monthly Family Programs
    • Researcher Roundtable
    • Awareness Day
    • 2024 Festival of Mark Making
  • Research
    • Clinical Trials
    • Research Grants
    • SCN8A Registry
  • Donate
  • Contact
  • Blog
  • Shop