​We believe that helping educate our families about drug discovery and clinical trials is essential to having an informed community that can consent to participate in studies. In September of 2020, we launched an educational series to engage the SCN8A families in important discussions surrounding drug discovery and clinical trials. Videos of the series sessions will be posted below as they become available. ​

Watch the Event Recordings

Fall 2021

  • Sept. 11–CTR Kickoff: SCN8A International Advocacy Efforts and Updates
  • Sept. 15–A Meeting with an FDA Representative About the Drug Approval Process
  • Sept. 22–SCN8A and Potential Future Treatments 101
  • Sept. 29–How Families Can Help Beyond Clinical Trials
  • Oct. 6–Community Meeting with Praxis Precision Medicines

Fall 2022

  • Sept. 21–From Data to Development: A Deeper Look at PRAX-562 and Your Role in its Progress
  • Sept. 28–Research Updates and Moving Beyond Clinical Trials 101
  • Oct. 5–The Cute Syndrome Foundation Updates and Drivers