The Cute Syndrome Foundation: SCN8A Support, Awareness, and Research
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3rd Annual Run, Roll, & Stroll

5K OR 1 MILE VIRTUAL RACE FOR SCN8A AWARENESS
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Join us anywhere, anytime between October 3rd and October 31st, 2025!

REGISTER NOW

$10 Registration

Includes printable race bib and virtual finisher badge

Race Shirts Available

$35 + tax and shipping

Frequently Asked Questions

How does this race work?
1. Click the button above to register for the race on RunSignUp.com.
2. Closer to the race date you'll be emailed your printable race bib, and after the race, you'll be emailed a virtual finisher's badge to share on social media! 
3. Set a time to run during the race period. You can run or walk on a road or treadmill either alone or with a group of friends. Remember to log your race at RunSignUp.com!
4. Don't forget to share your run/walk/roll on social media and tag @thecutesyndrome!
5. Want a race shirt? This year, they're sold separately in our Bonfire Store. Click here to order!


Can I create a team in honor of my SCN8A loved one?
Yes! This year, you can participate in one of 3 ways:
  1. Register to complete the 1 mile or 5k race AND fundraise for The Cute Syndrome Foundation by creating a team! Choose "become a Team Member" during registration. If you created a team last year, you can activate it for the 2025 race with one click!
  2. Register to complete either the 1 mile or 5k race - no fundraising required!
  3. Donate or fundraise only - if you'd like to donate without completing the race, this option is for you! Click here and donate to an existing team or create one of your own by selecting "become a team member."

Can I participate if I live outside the US?
Yes! The global SCN8A community can register directly at runsignup.com/TCSFrace. 

Questions? Send an email to [email protected]

REGISTER TO RACE
PURCHASE A RACE SHIRT
DONATE OR BECOME A FUNDRAISER
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Past Annual Reports

Past PCDH19 Efforts

​Privacy Policy

The Cute Syndrome Foundation

PO Box 842 Ozark, MO 65721​
The Cute Syndrome is registered as a tax-exempt organization under IRS section 501(c)(3).
​
Our tax identification number is: 46-2699066.

© The Cute Syndrome Foundation, All rights reserved
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  • Home
  • About
    • About SCN8A
    • About Us
    • Partner Organizations
    • Volunteers
    • Annual Report
  • Families
    • Join our SCN8A Community
    • Connor James Smith Patient Assistance Grant
    • Educational Videos >
      • Annual Gathering Event Recordings
      • Cheers to a Good Life
      • Clinical Trial Readiness Series
      • Family and Researcher Roundtable Series
      • Meaningful Change Series
    • Resources >
      • Caregiver Support
      • Reference Guide
      • Shareable Graphics
    • CUTE Connections Grant
    • SCN8A Warriors
    • Virtual Memory Wall
  • Events
    • Annual SCN8A Clinician, Researcher, and Family Gathering >
      • CUTIES Awards
    • 2025 Virtual Race
    • Monthly Family Programs
    • Researcher Roundtable
    • Awareness Day
    • 2024 Festival of Mark Making
  • Research
    • Clinical Trials
    • Research Grants
    • SCN8A Registry
  • Donate
  • Contact
  • Blog
  • Shop