The Cute Syndrome Foundation: SCN8A Epilepsy Support, Awareness, and Research
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Virtual 5k

FUN RUN, WALK, AND ROLL!
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Join us on April 23, 2023 for our first ever Virtual 5k!

REGISTER NOW
We invite participants to run, walk, or roll 3.1 miles in celebration of our SCN8A community! Participate anywhere, anytime on Sunday, April 23* then enter your time on the race website.

$30 Registration

Includes medal and downloadable race bib

$40-$43 Registration

Includes medal, downloadable race bib and performance tee

Frequently Asked Questions

What is a Virtual Race?
A Virtual Race is a race you can run at any location, at your pace, outside or on a treadmill, alone or with a group of friends. 

How does this race work?
1. Click the button above to register for the race on GoneForaRun.com.
​2. Once you register you will be sent your race package. Race packages include your race medal, bib, and a race t-shirt.
3. Set a time to run during the race period. You can run or walk on a road or treadmill and either alone or with a group of friends. Remember to log your race time at GoneForaRun.com!
4. Don't forget to share your run/walk/roll on social media and tag @thecutesyndrome!

Do I have to run the race on the 23rd?
The big event is April 23rd, however you can complete your race and submit your times from April 16th–23rd.

Can I participate if I live outside the US?
Registration on GoneForARun.com is open to US participants only, but we invite supporters all over the world to participate! To register from outside of the US, contact Danielle@thecutesyndrome.com. Extra shipping fees will apply and we cannot guarantee shipping dates to participants outside of the US. 

For more information: danielle@thecutesyndrome.com

Past Annual Reports

Past PCDH19 Efforts

​Privacy Policy

The Cute Syndrome Foundation

PO Box 842 Ozark, MO 65721​
The Cute Syndrome is registered as a tax-exempt organization under IRS section 501(c)(3).
​
Our tax identification number is: 46-2699066.

© The Cute Syndrome Foundation, All rights reserved
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  • Home
  • About
    • About SCN8A
    • About Us
    • Partner Organizations
    • Volunteers
    • Sponsors
    • 2021 Annual Report
  • Families
    • Caregiver Support
    • CUTE Connections Grant Application
    • Join our SCN8A Community
    • SCN8A Warriors
    • Educational Videos
    • Reference Guide
    • Resources
    • Shareable Graphics
  • Events
    • Annual SCN8A Clinician, Researcher, and Family Gathering
    • Researcher Roundtable
    • Awareness Day
    • Virtual 5k
  • Research
    • Clinical Trials
    • Research Grants
    • SCN8A Registry
  • Donate
  • Contact
  • Blog
  • Shop