We're sorry about your family member’s diagnosis, but we're glad you found us!
Facebook Support Group
The SCN8A community has a private Facebook support group created by a parent, Juliann Bradish, Pharm D., that is made up of only patients, parents, and direct caregivers of those with SCN8A mutations. Less than 1,000 cases have been diagnosed worldwide, and we have personally connected with over 535 families who are active in the support group. Our group represents families in 43 states in the US and 54 countries worldwide.
Please fill out the form below, then click this link to join the SCN8A Families Support Group.
TCSF Family Network
By filling out the form below, you will be added to the TCSF Family Network, connecting you with a supportive community of families and advocates. As a member, you will receive email newsletters with important updates on educational programming, grants, clinical trials, Cute Connections meetups, our annual Gathering, and other valuable resources to support your journey.
Facebook Support Group
The SCN8A community has a private Facebook support group created by a parent, Juliann Bradish, Pharm D., that is made up of only patients, parents, and direct caregivers of those with SCN8A mutations. Less than 1,000 cases have been diagnosed worldwide, and we have personally connected with over 535 families who are active in the support group. Our group represents families in 43 states in the US and 54 countries worldwide.
Please fill out the form below, then click this link to join the SCN8A Families Support Group.
TCSF Family Network
By filling out the form below, you will be added to the TCSF Family Network, connecting you with a supportive community of families and advocates. As a member, you will receive email newsletters with important updates on educational programming, grants, clinical trials, Cute Connections meetups, our annual Gathering, and other valuable resources to support your journey.
The information collected by The Cute Syndrome Foundation will not be sold or distributed outside of TCSF and is used solely to verify the identity of and communicate with TSCF Family Network members as needed. The TCSF SCN8A Families Support Group is open to any patient, parent, or legal guardian who is interested in learning more about SCN8A and supporting our community of families.
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