The Cute Syndrome Foundation: SCN8A Epilepsy Support, Awareness, and Research
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We're sorry about your family member’s diagnosis, but we're glad you found us! 

You've come to the right place. The SCN8A community has a private Facebook support group created by a parent,
Juliann Bradish Pharm D., that is made up of only
 parents and direct caregivers of those with SCN8A mutations. We know of approximately ~450 cases that exist in the world and we have personally connected with over 280 that are active in the support group.  Our group represents 38 US states, and internationally represents 38 Countries.


We would love to have you added to our group, but due to the strong privacy settings on the page we can only add people who are Facebook friends of the administrator, and fellow SCN8A parent, Shelley Frappier. 

Registration Form

Please fill in the form below.

The information collected by The Cute Syndrome Foundation will not be sold or distributed outside of TCSF and is used solely to verify the identity of and communicate with SCN8A Families Support Group members as needed. TCSF SCN8A Families Support Group is open to any parent or legal guardian who is interested in learning more about SCN8A Epilepsy and supporting our community of families. 
International SCN8A Awareness Day
Past Annual Reports

Past PCDH19 Efforts

​Privacy Policy

​Annual SCN8A Family Gathering Portal
​
The Cute Syndrome is registered as a tax-exempt organization under IRS section 501(c)(3).
​

​Our tax identification number is: 46-2699066.

© The Cute Syndrome Foundation, All rights reserved
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  • Home
  • About
    • About SCN8A
    • About Us
    • Partner Organizations
    • Volunteers
    • Sponsors
    • 2019 Annual Report
  • Families
    • Join our SCN8A Community
    • SCN8A Warriors
    • Reference Guide
    • Shareable Resources
    • Family Meetup Grant Application
  • Events
    • 2020 Annual Gathering
    • Annual SCN8A Clinician, Researcher, and Family Gathering
    • Researcher Roundtable
    • Awareness Day
  • Research
    • Research Grants
    • SCN8A Registry
  • Donate
    • How You Can Help
    • SCN8A Awareness Gifts
  • Contact
  • Gathering Family Portal
    • 2020 Annual Gathering >
      • Video Page
    • 2019 Annual Gathering >
      • Day 1 Agenda
      • Day 2 Agenda
      • Presentations
      • Speakers
      • Video Page
    • SCN8A Lexicon
  • Blog
  • Shop