The Cute Syndrome Foundation: SCN8A Epilepsy Support, Awareness, and Research
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Caregiver Support

Please Note: We are not medical professionals and cannot review any diagnostic tests (like EEGs) or provide medical advice. We also cannot provide financial support.

Direct Support For Caregivers

Peer support is a form of emotional and practical help from somebody who has lived through a similar experience and who is trained to offer support. Everyone’s situation is unique but being able to turn to someone who has faced similar challenges makes navigating the journey of disease diagnosis, treatment, and management less isolating.
You don’t need to walk the path alone.
Our peer support specialists are available virtually to listen to you, encourage you, and help you find the resources you need.
Fill out the form below to get in touch with a peer support specialist.

Registration Form

Please fill in the form below.

Past Annual Reports

Past PCDH19 Efforts

​Privacy Policy

The Cute Syndrome Foundation

PO Box 842 Ozark, MO 65721​
The Cute Syndrome is registered as a tax-exempt organization under IRS section 501(c)(3).
​
Our tax identification number is: 46-2699066.

© The Cute Syndrome Foundation, All rights reserved
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  • Home
  • About
    • About SCN8A
    • About Us
    • Partner Organizations
    • Volunteers
    • Sponsors
    • 2021 Annual Report
  • Families
    • Caregiver Support
    • CUTE Connections Grant Application
    • Join our SCN8A Community
    • SCN8A Warriors
    • Educational Videos
    • Reference Guide
    • Resources
    • Shareable Graphics
  • Events
    • Annual SCN8A Clinician, Researcher, and Family Gathering
    • Researcher Roundtable
    • Awareness Day
    • Virtual 5k
  • Research
    • Clinical Trials
    • Research Grants
    • SCN8A Registry
  • Donate
  • Contact
  • Blog
  • Shop