Hillary Savoie, Ph.D.TCSF Founder, Writer, Advocate—and Esmé's MomHillary Savoie, PhD is the Founder and former Director of The Cute Syndrome Foundation. Her daughter Esmé has mutations in PCDH19, SCN8A, TBL1XR1, and MAP 3K7—making such a complex genetic puzzle that she's been written about in the Wall Street Journal. Hillary writes personal essays and reported features about life with medically-complex children for Romper.com. Her stories about Esmé have been featured on the New York Times Parenting Blog, the podcast Story Collider, among others.
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Kacie Craig, M.Ed.Executive Director—and Stella's Mom |
Hillary Savoie, Ph.D.Lan Aronson, Ph.D. |
Philip GitlenRyan Pitino |
Marianne Sutcliffe |
Shelley Frappier
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Karen Varner
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Megan Varner
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Amy Biddlecombe
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Ben Clay
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Cinzia Scarcelli
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Dianely Cabrera
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Heather Crowley
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Jaden Bitton
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Angie Day
USA / Kolton's Mom
Erin Ledrich
USA / Kalina's Mom
Jennifer Stout
USA / Ryan's Mom
Kristin Bejarano
USA / Peto's Mom
Mary Tone
USA /Billy's Mom
Nora Lyons
USA /Blake's Mom
Selene Johnson
USA /Kiya's Mom
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Denise Juroske Short
USA / Sadie's Aunt
Jacob Gard
USA / Clayton's Dad
Katie Banks
USA / Wyatt's Mom
Lacey Juroske
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Emma Johnston
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Our tax identification number is: 46-2699066. © The Cute Syndrome Foundation, All rights reserved |