The Cute Syndrome Foundation offers a variety of educational video series to help caregivers and families to navigate their loved one’s SCN8A diagnosis. 

Family and Researcher Rountable

Over the last 3 years, TCSF has made significant progress towards preparing the SCN8A community for 2 clinical trials; therefore, we felt it time to refocus our fall education series from Clinical Trial Readiness towards a Family and Researcher Roundtable series. Hosting a Family and Researcher Roundtable allows us to pivot towards a variety of research and quality-of-life topics to keep our community informed and active in the care and treatment of their loved one with SCN8A.

Annual SCN8A Gathering Event Recordings

Since 2015, The Cute Syndrome Foundation has hosted the Annual SCN8A Clinician, Researcher, and Family Gathering, which is held in conjunction with the American Epilepsy Society Annual Meeting. Click to see recordings from past Gatherings.

Cheers to a Good Life Workshop Series

One hour workshops that introduce Charting the LifeCourse Framework and tools to help you plan and create your Good Life.

Clinical Trial Readiness Series

The Clinical Trial Readiness series was created to engage SCN8A families in important discussions surrounding drug discovery and clinical trials. 

Meaningful Change Series

The Meaningful Change Series looks at the ways in which the knowledge found within the SCN8A community can be leveraged to better support all of our children.