The Cute Syndrome Foundation offers a variety of educational video series to help caregivers and families to navigate their loved one’s SCN8A diagnosis.
Annual SCN8A Gathering Event RecordingsSince 2015, The Cute Syndrome Foundation has hosted the Annual SCN8A Clinician, Researcher, and Family Gathering, which is held in conjunction with the American Epilepsy Society Annual Meeting. Click to see recordings from past Gatherings.
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Cheers to a Good Life Workshop SeriesOne hour workshops that introduce Charting the LifeCourse Framework and tools to help you plan and create your Good Life.
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Clinical Trial Readiness SeriesThe Clinical Trial Readiness series was created to engage SCN8A families in important discussions surrounding drug discovery and clinical trials.
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Meaningful Change SeriesThe Meaningful Change Series looks at the ways in which the knowledge found within the SCN8A community can be leveraged to better support all of our children.
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Past Annual Reports
Past PCDH19 Efforts Privacy Policy The Cute Syndrome Foundation PO Box 842 Ozark, MO 65721 |
The Cute Syndrome is registered as a tax-exempt organization under IRS section 501(c)(3).
Our tax identification number is: 46-2699066. © The Cute Syndrome Foundation, All rights reserved
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