Since 2015, The Cute Syndrome Foundation has hosted the Annual SCN8A Clinician, Researcher, and Family Gathering, which is held in conjunction with the American Epilepsy Society Annual Meeting. At this Gathering, you see families meeting in real life for the first time after years of creating deep personal bonds over the internet. You also see clinicians and researchers exchanging data among themselves and with families, making the kinds of connections that come from face-to-face interactions. As a result our SCN8A families are empowered with vital information about their children’s health; clinicians learn how to better serve their SCN8A patients; and researchers establish collaborations inspired by the SCN8A patients and their families.

2018–New Orleans, LA

2017–Washington, DC

Past Gathering Blog Recaps

2021 Gathering in Chicago, IL
2020 Gathering — Virtual
2019 Gathering in Baltimore, MD
2018 Gathering in New Orleans, LA
2017 Gathering in Washington, DC
2016 Gathering in Houston, TX
2015 Gathering in Philadelphia, PA