The Cute Syndrome Foundation: SCN8A Support, Awareness, and Research
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  • About
    • About SCN8A
    • About Us
    • Partner Organizations
    • Volunteers
    • Annual Report
  • Families
    • Join our SCN8A Community
    • Connor James Smith Patient Assistance Grant
    • Educational Videos >
      • Annual Gathering Event Recordings
      • Cheers to a Good Life
      • Clinical Trial Readiness Series
      • Family and Researcher Roundtable Series
      • Meaningful Change Series
    • Resources >
      • Caregiver Support
      • Reference Guide
      • Shareable Graphics
    • CUTE Connections Grant
    • SCN8A Warriors
    • Virtual Memory Wall
  • Events
    • Annual SCN8A Clinician, Researcher, and Family Gathering >
      • CUTIES Awards
      • Speakers
    • Researcher Roundtable
    • Awareness Day
    • Layla: The Festival of Mark Making
    • Virtual 5k
  • Research
    • Clinical Trials
    • Research Grants
    • SCN8A Registry
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SCN8A Clinician, Researcher, and Family Gathering

Event Recordings
Since 2015, The Cute Syndrome Foundation has hosted the Annual SCN8A Clinician, Researcher, and Family Gathering, which is held in conjunction with the American Epilepsy Society Annual Meeting. At this Gathering, you see families meeting in real life for the first time after years of creating deep personal bonds over the internet. You also see clinicians and researchers exchanging data among themselves and with families, making the kinds of connections that come from face-to-face interactions. As a result our SCN8A families are empowered with vital information about their children’s health; clinicians learn how to better serve their SCN8A patients; and researchers establish collaborations inspired by the SCN8A patients and their families.
VIEW THE PLAYLIST ON YOUTUBE

2024 Los Angeles, CA

2023 Orlando, FL

2022 Nashville, TN

2021 Chicago, IL

2020 SCN8A Gathering Videos

Due to COVID, our 2020 SCN8A Gathering shifted to a fully virtual format. While we missed being together in person, going virtual allowed us to feature even more heartfelt videos and stories from SCN8A families around the world.
WATCH THE 2020 VIDEOS

2019 Baltimore, MD

SCN8A 101—Eric Wengert

2018 New Orleans, LA

2017 Washington, DC

2016 Houston, TX

2016 Philadelphia, PA (First SCN8A Gathering)

Part 1
Part 2

Past Gathering Blog Recaps


2024 Gathering in Los Angeles, CA
2023 Gathering in Orlando, FL
2022 Gathering in Nashville, TN
2021 Gathering in Chicago, IL
2020 Gathering — Virtual
2019 Gathering in Baltimore, MD
2018 Gathering in New Orleans, LA
2017 Gathering in Washington, DC
2016 Gathering in Houston, TX
2015 Gathering in Philadelphia, PA
Past Annual Reports

Past PCDH19 Efforts

​Privacy Policy

The Cute Syndrome Foundation

PO Box 842 Ozark, MO 65721​
The Cute Syndrome is registered as a tax-exempt organization under IRS section 501(c)(3).
​
Our tax identification number is: 46-2699066.

© The Cute Syndrome Foundation, All rights reserved
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  • Home
  • About
    • About SCN8A
    • About Us
    • Partner Organizations
    • Volunteers
    • Annual Report
  • Families
    • Join our SCN8A Community
    • Connor James Smith Patient Assistance Grant
    • Educational Videos >
      • Annual Gathering Event Recordings
      • Cheers to a Good Life
      • Clinical Trial Readiness Series
      • Family and Researcher Roundtable Series
      • Meaningful Change Series
    • Resources >
      • Caregiver Support
      • Reference Guide
      • Shareable Graphics
    • CUTE Connections Grant
    • SCN8A Warriors
    • Virtual Memory Wall
  • Events
    • Annual SCN8A Clinician, Researcher, and Family Gathering >
      • CUTIES Awards
      • Speakers
    • Researcher Roundtable
    • Awareness Day
    • Layla: The Festival of Mark Making
    • Virtual 5k
  • Research
    • Clinical Trials
    • Research Grants
    • SCN8A Registry
  • Donate
  • Contact
  • Blog
  • Shop