The Cute Syndrome Foundation: SCN8A Epilepsy Support, Awareness, and Research
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  • Events
    • Annual SCN8A Clinician, Researcher, and Family Gathering
    • Researcher Roundtable
    • Awareness Day
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    • Clinical Trials
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SCN8A Clinician, Researcher, and Family Gathering

Event Recordings
Since 2015, The Cute Syndrome Foundation has hosted the Annual SCN8A Clinician, Researcher, and Family Gathering, which is held in conjunction with the American Epilepsy Society Annual Meeting. At this Gathering, you see families meeting in real life for the first time after years of creating deep personal bonds over the internet. You also see clinicians and researchers exchanging data among themselves and with families, making the kinds of connections that come from face-to-face interactions. As a result our SCN8A families are empowered with vital information about their children’s health; clinicians learn how to better serve their SCN8A patients; and researchers establish collaborations inspired by the SCN8A patients and their families.
2022 Videos
2021 Videos
2020 Videos
2019 Videos

2018–New Orleans, LA

2017–Washington, DC

Past Gathering Blog Recaps


2021 Gathering in Chicago, IL
2020 Gathering — Virtual
2019 Gathering in Baltimore, MD
2018 Gathering in New Orleans, LA
2017 Gathering in Washington, DC
2016 Gathering in Houston, TX
2015 Gathering in Philadelphia, PA
Past Annual Reports

Past PCDH19 Efforts

​Privacy Policy

The Cute Syndrome Foundation

PO Box 842 Ozark, MO 65721​
The Cute Syndrome is registered as a tax-exempt organization under IRS section 501(c)(3).
​
Our tax identification number is: 46-2699066.

© The Cute Syndrome Foundation, All rights reserved
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  • Home
  • About
    • About SCN8A
    • About Us
    • Partner Organizations
    • Volunteers
    • Sponsors
    • 2021 Annual Report
  • Families
    • Caregiver Support
    • Join our SCN8A Community
    • SCN8A Warriors
    • Educational Videos
    • Reference Guide
    • Resources
    • Shareable Graphics
  • Events
    • Annual SCN8A Clinician, Researcher, and Family Gathering
    • Researcher Roundtable
    • Awareness Day
  • Research
    • Clinical Trials
    • Research Grants
    • SCN8A Registry
  • Donate
  • Contact
  • Blog
  • Shop