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TBD
Los Angeles, CA
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Friday, December 6th &
​Saturday, December 7th

Each year, The Cute Syndrome Foundation hosts the annual SCN8A Clinician, Researcher, and Family Gathering

Since 2015, The Cute Syndrome Foundation has hosted the Annual SCN8A Clinician, Researcher, and Family Gathering, which is held in conjunction with the American Epilepsy Society Annual Meeting.

We have hosted over 100 people each year at this Gathering, which is a venue for leading clinicians and researchers to share their work, ask questions, and connect with the experts in life with SCN8A: the families. It is a moving example of what can happen when a group of invested individuals is brought together with the goal of creating better lives for those living with SCN8A.

At this Gathering, you see families meeting in real life for the first time after years of creating deep personal bonds over the internet. You also see clinicians and researchers exchanging data among themselves and with families, making the kinds of connections that come from face-to-face interactions. As a result our SCN8A families are empowered with vital information about their children’s health; clinicians learn how to better serve their SCN8A patients; and researchers establish collaborations inspired by the SCN8A patients and their families.

​The Annual Gathering helps us all be #SCN8AStrong.​

2024 Agenda

Professionals are invited to join us on Friday night for a full agenda of industry, clinical, research, and family presentations. Social and educational opportunities are available for SCN8A families on Friday afternoon and Saturday morning. Virtual ticket options for Friday night are available for those who are unable to join us in person. The Friday night event will also be recorded for viewing at a later date.
Friday, December 6, 2024     
Family Education 1:00-4:00 PM (PST)
1:00 pm       Family registration and education
4:00 pm       Break

Professionals and Families 6-10:00 PM (PST)
5:00 pm        Registration and cocktail hour
5:30 pm        Doors open
6:00 pm        Welcome
10:00 pm      Closing
Saturday, December 7, 2024                          
Family Activities 8:30 AM-3 PM (PST)
8:30 am      Breakfast and welcome
9:00 am      Family educational programming
12:00 pm    Lunch
12:30 pm    Storytelling workshop
2:00 pm      Breakout sessions
Full agenda and speakers coming soon!

2024 Gathering shirts coming soon!

2023 Photos

Photo Credit: Ryan Collerd
www.ryancollerd.com

CUTIES Awards

After our first SCN8A Clinician, Researcher, and Family Gathering, held in 2015, we saw a handful of individuals rising to the opportunity to work collaboratively to improve the health and safety of those living with SCN8A. As a result we created the CUTIES, our annual awards for Champions for Understanding, Treating, Investigating, and Empowering those with SCN8A. ​

2024 Sponsors

Want to help make this event a success?
​Consider becoming an event Sponsor or making a donation. Inquiries should be directed to Kacie Craig.

Learn More About Past Gatherings