The Cute Syndrome Foundation: SCN8A Epilepsy Support, Awareness, and Research
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      • Video Page
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      • Video Page
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Annual Clinician, Researcher, & Family Gathering

Picture
Photo credit Ryan Collerd. www.ryancollerd.com

Each year, The Cute Syndrome Foundation hosts the annual SCN8A Clinician, Researcher, and Family Gathering

2021 GATHERING VIDEOS
Since 2015, The Cute Syndrome Foundation has hosted the Annual SCN8A Clinician, Researcher, and Family Gathering, which is held in conjunction with the American Epilepsy Society Annual meeting.

We have hosted over 100 people each year at this Gathering, which is a venue for leading clinicians and researchers to share their work, ask questions, and connect with the experts in life with SCN8A: the families. It is a moving example of what can happen when a group of invested individuals is brought together with the goal of creating better lives for those living with SCN8A.

At this Gathering, you see families meeting in real life for the first time after years of creating deep personal bonds over the internet. You also see clinicians and researchers exchanging data among themselves and with families, making the kinds of connections that come from face-to-face interactions. As a result our SCN8A families are empowered with vital information about their children’s health; clinicians learn how to better serve their SCN8A patients; and researchers establish collaborations inspired by the SCN8A patients and their families.

​The Annual Gathering helps us all be #SCN8AStrong.​
Photo Credit: Ryan Collerd
www.ryancollerd.com

2021 Gathering

Date:   December 3-4, 2021
Location:   Hybrid (in-person by invitation only)
2021 GATHERING REGISTRATION

Past Gatherings


2020 Gathering — Virtual
2019 Gathering in Baltimore, MD
2018 Gathering in New Orleans, LA
2017 Gathering in Washington, DC
2016 Gathering in Houston, TX
2015 Gathering in Philadelphia, PA
Past Annual Reports

Past PCDH19 Efforts

​Privacy Policy

​Annual SCN8A Family Gathering Portal
​
The Cute Syndrome is registered as a tax-exempt organization under IRS section 501(c)(3).
​

​Our tax identification number is: 46-2699066.

© The Cute Syndrome Foundation, All rights reserved
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  • Home
  • About
    • About SCN8A
    • About Us
    • Partner Organizations
    • Volunteers
    • Sponsors
    • 2020 Annual Report
  • Families
    • Caregiver Support
    • Join our SCN8A Community
    • SCN8A Warriors
    • Reference Guide
    • Resources
    • Shareable Graphics
  • Events
    • Annual SCN8A Clinician, Researcher, and Family Gathering >
      • CUTIES Awards
    • Researcher Roundtable
    • Awareness Day
  • Research
    • Research Grants
    • SCN8A Registry
    • Clinical Trials
  • Donate
    • How You Can Help
    • SCN8A Awareness Gifts
  • Contact
  • Gathering Family Portal
    • 2021 Annual Gathering >
      • Video Page
    • 2020 Annual Gathering >
      • Video Page
    • 2019 Annual Gathering >
      • Day 1 Agenda
      • Day 2 Agenda
      • Presentations
      • Speakers
      • Video Page
    • SCN8A Lexicon
  • Blog
  • Shop