The Cute Syndrome Foundation: SCN8A Support, Awareness, and Research
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Publications

TCSF has co-authored several publications with Xenon Pharmaceuticals​​


Xenon Company Poster. Virtual 2020 American Epilepsy Society (AES) Annual Meeting: “An Online Survey of Caregivers for Patients with SCN8A Developmental and Epileptic Encephalopathy (SCN8A-DEE) or SCN8A-Related Epilepsy.” December 4-8, 2020

Xenon Company Poster. 2020 American Academy of Neurology (AAN) Meeting: “An Online Survey of Caregivers of Patients with SCN8A-Related Epilepsy.” May 2020

Xenon Company Poster. 2019 American Epilepsy Society (AES) Annual Meeting–Genetic Epilepsies Scientific Exhibit: “An Online Survey of Caregivers of Patients with SCN8A-Related Epilepsy.” December 8, 2019
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Past Annual Reports

Past PCDH19 Efforts

​Privacy Policy

The Cute Syndrome Foundation

PO Box 842 Ozark, MO 65721​
The Cute Syndrome is registered as a tax-exempt organization under IRS section 501(c)(3).
​
Our tax identification number is: 46-2699066.

© The Cute Syndrome Foundation, All rights reserved
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  • Home
  • About
    • About SCN8A
    • About Us
    • Partner Organizations
    • Volunteers
    • Annual Report
  • Families
    • Join our SCN8A Community
    • Connor James Smith Patient Assistance Grant
    • Educational Videos >
      • Annual Gathering Event Recordings
      • Cheers to a Good Life
      • Clinical Trial Readiness Series
      • Family and Researcher Roundtable Series
      • Meaningful Change Series
    • Resources >
      • Caregiver Support
      • Reference Guide
      • Shareable Graphics
    • CUTE Connections Grant
    • SCN8A Warriors
    • Virtual Memory Wall
  • Events
    • Annual SCN8A Clinician, Researcher, and Family Gathering >
      • CUTIES Awards
      • Speakers
    • Researcher Roundtable
    • Awareness Day
    • Layla: The Festival of Mark Making
    • Virtual 5k
  • Research
    • Clinical Trials
    • Research Grants
    • SCN8A Registry
  • Donate
  • Contact
  • Blog
  • Shop