In December 2017 The Cute Syndrome Foundation hosted the third annual SCN8A Epilepsy Clinician, Researcher, and Family Gathering in Washington, DC.
Over 100 guests met, including professionals working on SCN8A research and treatment and more than 75 members of our SCN8A family community, including 14 children with SCN8A. Families traveled internationally from Canada, Germany, Brazil, and New Zealand.
The gathering is an important venue for sharing clinical information about the effective treatment of SCN8A epilepsy as well as highlighting ongoing research efforts. And for the third time, the SCN8A community was able to meet with the very professionals who dedicate their professional time to helping our children!
This year, thanks to the support of our sponsors and the hard work of our volunteers, we expanded our event to include a second day for families only—covering topics of importances to every day life with SCN8A.
We look forward to another ground-breaking gathering this year in New Orleans!
The Cute Syndrome is registered as a tax-exempt organization under IRS section 501(c)(3).
Our tax identification number is: 46-2699066.
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