The Cute Syndrome Foundation: SCN8A Support, Awareness, and Research
  • Home
  • About
    • About SCN8A
    • About Us
    • Partner Organizations
    • Volunteers
    • Annual Report
  • Families
    • Join our SCN8A Community
    • Connor James Smith Patient Assistance Grant
    • Educational Videos >
      • Annual Gathering Event Recordings
      • Cheers to a Good Life
      • Clinical Trial Readiness Series
      • Family and Researcher Roundtable Series
      • Meaningful Change Series
    • Resources >
      • Caregiver Support
      • Reference Guide
      • Shareable Graphics
    • CUTE Connections Grant
    • SCN8A Warriors
    • Virtual Memory Wall
  • Events
    • Annual SCN8A Clinician, Researcher, and Family Gathering >
      • CUTIES Awards
    • 2025 Virtual Race
    • Monthly Family Programs
    • Researcher Roundtable
    • Awareness Day
    • 2024 Festival of Mark Making
  • Research
    • Clinical Trials
    • Research Grants
    • SCN8A Registry
  • Donate
  • Contact
  • Blog
  • Shop

TCSF's 3rd Annual SCN8A Epilepsy Clinician, Researcher, and Family Gathering in Washington, D.C.

12/22/2018

0 Comments

 
Picture
In December 2017 The Cute Syndrome Foundation hosted the third annual SCN8A Epilepsy Clinician, Researcher, and Family Gathering in Washington, DC.

Over 100 guests met, including professionals working on SCN8A research and treatment and more than 75 members of our SCN8A family community, including 14 children with SCN8A. Families traveled internationally from Canada, Germany, Brazil, and New Zealand.
Picture
Picture
Picture
The gathering is an important venue for sharing clinical information about the effective treatment of SCN8A epilepsy as well as highlighting ongoing research efforts. And for the third time, the SCN8A community was able to meet with the very professionals who dedicate their professional time to helping our children!

This year, thanks to the support of our sponsors and the hard work of our volunteers, we expanded our event to include a second day for families only—covering topics of importances to every day life with SCN8A.
Picture
Picture
Picture

Picture
We look forward to another ground-breaking gathering this year in New Orleans!
0 Comments



Leave a Reply.

    Archives

    August 2025
    March 2025
    January 2025
    May 2024
    April 2024
    January 2024
    October 2023
    July 2023
    May 2023
    January 2023
    July 2022
    March 2021
    December 2020
    November 2020
    September 2020
    January 2020
    December 2019
    September 2019
    August 2019
    July 2019
    January 2019
    December 2018

    Categories

    All
    Announcement
    Annual Gathering
    Awareness Day
    Community
    Drug Development
    Grants
    Research

    RSS Feed

Past Annual Reports

Past PCDH19 Efforts

​Privacy Policy

The Cute Syndrome Foundation

PO Box 842 Ozark, MO 65721​
The Cute Syndrome is registered as a tax-exempt organization under IRS section 501(c)(3).
​
Our tax identification number is: 46-2699066.

© The Cute Syndrome Foundation, All rights reserved
Picture
Picture
Picture
Picture
  • Home
  • About
    • About SCN8A
    • About Us
    • Partner Organizations
    • Volunteers
    • Annual Report
  • Families
    • Join our SCN8A Community
    • Connor James Smith Patient Assistance Grant
    • Educational Videos >
      • Annual Gathering Event Recordings
      • Cheers to a Good Life
      • Clinical Trial Readiness Series
      • Family and Researcher Roundtable Series
      • Meaningful Change Series
    • Resources >
      • Caregiver Support
      • Reference Guide
      • Shareable Graphics
    • CUTE Connections Grant
    • SCN8A Warriors
    • Virtual Memory Wall
  • Events
    • Annual SCN8A Clinician, Researcher, and Family Gathering >
      • CUTIES Awards
    • 2025 Virtual Race
    • Monthly Family Programs
    • Researcher Roundtable
    • Awareness Day
    • 2024 Festival of Mark Making
  • Research
    • Clinical Trials
    • Research Grants
    • SCN8A Registry
  • Donate
  • Contact
  • Blog
  • Shop