The Cute Syndrome Foundation: SCN8A Epilepsy Support, Awareness, and Research
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Exciting News from Xenon Pharmaceuticals for the SCN8A Community!

7/5/2019

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Picture
TCSF Founder and Director, Hillary Savoie, with Xenon's VP of Biology, JP Johnson Jr, at Xenon during her visit in April 2019.
Last week, Xenon announced that they had received positive feedback from the FDA regarding the development of XEN901 that supported advancing XEN901 directly into a pediatric clinical trial examining its efficacy in pediatric patients with SCN8A epileptic encephalopathy (SCN8A-EE). This is important as most Anti-Epileptic Drugs (AEDs) have to be studied in adults before they are studied in pediatric populations.

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The Cute Syndrome is registered as a tax-exempt organization under IRS section 501(c)(3).
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  • Home
  • About
    • About SCN8A
    • About Us
    • Partner Organizations
    • Volunteers
    • Sponsors
    • 2021 Annual Report
  • Families
    • Caregiver Support
    • Connor James Smith Patient Assistance Grant
    • CUTE Connections Grant
    • Educational Videos
    • Join our SCN8A Community
    • Reference Guide
    • Resources
    • SCN8A Warriors
    • Shareable Graphics
  • Events
    • Annual SCN8A Clinician, Researcher, and Family Gathering
    • Researcher Roundtable
    • Awareness Day
    • Virtual 5k
  • Research
    • Clinical Trials
    • Research Grants
    • SCN8A Registry
  • Donate
  • Contact
  • Blog
  • Shop