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Esmé spent several days recently with world-renowned photographer Brent Stirton, who was documenting her daily life--from therapies, to doctors visits, to tube-feeding, to playing with her grandparents--for the Novartis annual report. Not only did she have a fantastic time having her photo taken, but she's very happy to be able to help raise awareness for PCDH19 Epilepsy! 
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