The Cute Syndrome Foundation: SCN8A Epilepsy Support, Awareness, and Research
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Help Luke's Family Raise $50k for Epilepsy Research!

8/21/2019

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This year a very special team will be walking at the Walk to End Epilepsy hosted by Epilepsy Foundation of Metropolitan New York: Luke's Walk for Epilepsy.

Luke is one of the approximately 350 children in the world known to have SCN8A-related epilepsy--and his family is so eager to help find better treatment for Luke and the other children with SCN8A mutations. As a result, the Epilepsy Foundation of Metropolitan New York has generously agreed to donate half of the money Luke's team raises to The Cute Syndrome Foundation in support of SCN8A.

Can you help them reach their goal of $50,000?
Donate Now!
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  • Home
  • About
    • About SCN8A
    • About Us
    • Partner Organizations
    • Volunteers
    • Sponsors
    • 2019 Annual Report
  • Families
    • Join our SCN8A Community
    • SCN8A Warriors
    • Reference Guide
    • Shareable Resources
    • Family Meetup Grant Application
  • Events
    • 2020 Annual Gathering
    • Annual SCN8A Clinician, Researcher, and Family Gathering
    • Researcher Roundtable
    • Awareness Day
  • Research
    • Research Grants
    • SCN8A Registry
  • Donate
    • How You Can Help
    • SCN8A Awareness Gifts
  • Contact
  • Gathering Family Portal
    • 2020 Annual Gathering >
      • Video Page
    • 2019 Annual Gathering >
      • Day 1 Agenda
      • Day 2 Agenda
      • Presentations
      • Speakers
      • Video Page
    • SCN8A Lexicon
  • Blog
  • Shop