The Cute Syndrome Foundation: SCN8A Support, Awareness, and Research
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Help Luke's Family Raise $50k for Epilepsy Research!

8/21/2019

1 Comment

 
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This year a very special team will be walking at the Walk to End Epilepsy hosted by Epilepsy Foundation of Metropolitan New York: Luke's Walk for Epilepsy.

Luke is one of the approximately 350 children in the world known to have SCN8A-related epilepsy--and his family is so eager to help find better treatment for Luke and the other children with SCN8A mutations. As a result, the Epilepsy Foundation of Metropolitan New York has generously agreed to donate half of the money Luke's team raises to The Cute Syndrome Foundation in support of SCN8A.

Can you help them reach their goal of $50,000?
Donate Now!
1 Comment
Moiras Burton link
9/14/2023 04:18:08 pm

Hi thanks for posting thiss

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The Cute Syndrome Foundation

PO Box 842 Ozark, MO 65721​
The Cute Syndrome is registered as a tax-exempt organization under IRS section 501(c)(3).
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Our tax identification number is: 46-2699066.

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  • Home
  • About
    • About SCN8A
    • About Us
    • Our Team
    • Annual Report
  • Families
    • Join our SCN8A Community
    • Connor James Smith Patient Assistance Grant
    • Educational Videos >
      • Annual Gathering Event Recordings
      • Caregiver Talk + Tools
      • Cheers to a Good Life
      • Clinical Trial Readiness Series
      • Family and Researcher Roundtable Series
      • Meaningful Change Series
    • Resources
    • CUTE Connections Grant
    • SCN8A Warriors
    • Virtual Memory Wall
    • Awareness
  • Events
    • Annual Gathering >
      • CUTIES Awards
      • Speakers
      • Family Travel Info
      • Travel Grant
    • Monthly Family Programs
    • Virtual Race
  • Research
    • SCN8A Research
    • Clinical Trials
    • Research Grants
  • Donate
  • Contact
  • Blog
  • Shop