Last year Luke Pitino, who was diagnosed with SCN8A epilepsy in his first year of life, and his family raised $71,000 for the Epilepsy Foundation of Metropolitan New York (EFMNY) and The Cute Syndrome Foundation (TCSF) during the Annual Walk to End Epilepsy! This effort established a fantastic and on-going fundraising partnership between EFMNY and TCSF.
This year Luke and the Pitino family are at it again!
Since Luke’s diagnosis, his family has worked diligently to spread awareness and fundraise for The Cute Syndrome Foundation and the SCN8A community. His father, Ryan, joined our board of directors in 2019.
Like last year, half of the money raised by Luke’s Walk to End Epilpesy will be donated by the Epilepsy Foundation of Metropolitan New York to The Cute Syndrome Foundation to support SCN8A awareness and research.
This year, since the Walk will be held virtually, we can all join Luke’s team, from far and wide, to support Luke, EFMNY, and The Cute Syndrome Foundation. Can you help them reach their goal of $50,000 in support of EFMNY and TCSF?
Support the team below between now and October 18th to become an #SCN8Achampion and join Luke and TCSF on the Annual Walk to End Epilepsy!
4/25/2023 10:17:38 pm
Hi nicce reading your post
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