The Cute Syndrome Foundation: SCN8A Epilepsy Support, Awareness, and Research
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Marinus Pharma will be pursuing a PCDH19 trial with their drug Ganaxolone.

12/22/2018

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We are so very proud that the hard work of our partner organization in Italy, Insieme per la ricerca PCDH19 - ONLUS, has contributed an upcoming drug trial by Marinus Pharma with a new medication: ganaxolone. This trial is the direct result of Insieme per la Ricerca PCDH19's funding of research over two years and their persistence in organizing the medical, research, and pharmaceutical community. We are so grateful for their work.
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The Cute Syndrome Foundation

PO Box 842 Ozark, MO 65721​
The Cute Syndrome is registered as a tax-exempt organization under IRS section 501(c)(3).
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  • Home
  • About
    • About SCN8A
    • About Us
    • Partner Organizations
    • Volunteers
    • Sponsors
    • 2021 Annual Report
  • Families
    • Caregiver Support
    • Join our SCN8A Community
    • SCN8A Warriors
    • Educational Videos
    • Reference Guide
    • Resources
    • Shareable Graphics
  • Events
    • Annual SCN8A Clinician, Researcher, and Family Gathering
    • Researcher Roundtable
    • Awareness Day
  • Research
    • Clinical Trials
    • Research Grants
    • SCN8A Registry
  • Donate
  • Contact
  • Blog
  • Shop