The Cute Syndrome Foundation: SCN8A Support, Awareness, and Research
  • Home
  • About
    • About SCN8A
    • About Us
    • Partner Organizations
    • Volunteers
    • Annual Report
  • Families
    • Join our SCN8A Community
    • Connor James Smith Patient Assistance Grant
    • Educational Videos >
      • Annual Gathering Event Recordings
      • Cheers to a Good Life
      • Clinical Trial Readiness Series
      • Family and Researcher Roundtable Series
      • Meaningful Change Series
    • Resources >
      • Caregiver Support
      • Reference Guide
      • Shareable Graphics
    • CUTE Connections Grant
    • SCN8A Warriors
    • Virtual Memory Wall
  • Events
    • Annual SCN8A Clinician, Researcher, and Family Gathering >
      • CUTIES Awards
      • Speakers
    • Researcher Roundtable
    • Awareness Day
    • Layla: The Festival of Mark Making
    • Virtual 5k
  • Research
    • Clinical Trials
    • Research Grants
    • SCN8A Registry
  • Donate
  • Contact
  • Blog
  • Shop

The Cute Syndrome Announces $135,000 Research Grant

12/22/2018

0 Comments

 
The Cute Syndrome, with our partners Insieme per la Ricerca PCDH19, is thrilled to announce the first internationally funded PCDH19 research grant competition funding a 100,000€/$135,000 two-year research grant. This grant has only been made possible by the tremendous generosity of our donors. When we began The Cute Syndrome almost one year ago our goals were rather modest. We wanted to contribute to the work our partners in Italy were doing funding PCDH19 research, and we wanted to help raise awareness of PCDH19 by telling Esmé's story. The support we have received over the last year has been nothing short of amazing, allowing us to exceed our initial funding goals and offer such a significant grant amount while still in our first year. Thank you for your support, and stay tuned as we will gear up for our one-year anniversary!
0 Comments



Leave a Reply.

    Archives

    March 2025
    January 2025
    May 2024
    April 2024
    January 2024
    October 2023
    July 2023
    May 2023
    January 2023
    July 2022
    March 2021
    December 2020
    November 2020
    September 2020
    January 2020
    December 2019
    September 2019
    August 2019
    July 2019
    January 2019
    December 2018

    Categories

    All
    Announcement
    Annual Gathering
    Awareness Day
    Community
    Drug Development
    Grants
    Research

    RSS Feed

Past Annual Reports

Past PCDH19 Efforts

​Privacy Policy

The Cute Syndrome Foundation

PO Box 842 Ozark, MO 65721​
The Cute Syndrome is registered as a tax-exempt organization under IRS section 501(c)(3).
​
Our tax identification number is: 46-2699066.

© The Cute Syndrome Foundation, All rights reserved
Picture
Picture
Picture
Picture
  • Home
  • About
    • About SCN8A
    • About Us
    • Partner Organizations
    • Volunteers
    • Annual Report
  • Families
    • Join our SCN8A Community
    • Connor James Smith Patient Assistance Grant
    • Educational Videos >
      • Annual Gathering Event Recordings
      • Cheers to a Good Life
      • Clinical Trial Readiness Series
      • Family and Researcher Roundtable Series
      • Meaningful Change Series
    • Resources >
      • Caregiver Support
      • Reference Guide
      • Shareable Graphics
    • CUTE Connections Grant
    • SCN8A Warriors
    • Virtual Memory Wall
  • Events
    • Annual SCN8A Clinician, Researcher, and Family Gathering >
      • CUTIES Awards
      • Speakers
    • Researcher Roundtable
    • Awareness Day
    • Layla: The Festival of Mark Making
    • Virtual 5k
  • Research
    • Clinical Trials
    • Research Grants
    • SCN8A Registry
  • Donate
  • Contact
  • Blog
  • Shop