The Cute Syndrome Foundation: SCN8A Epilepsy Support, Awareness, and Research
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The Cute Syndrome Announces $135,000 Research Grant

12/22/2018

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The Cute Syndrome, with our partners Insieme per la Ricerca PCDH19, is thrilled to announce the first internationally funded PCDH19 research grant competition funding a 100,000€/$135,000 two-year research grant. This grant has only been made possible by the tremendous generosity of our donors. When we began The Cute Syndrome almost one year ago our goals were rather modest. We wanted to contribute to the work our partners in Italy were doing funding PCDH19 research, and we wanted to help raise awareness of PCDH19 by telling Esmé's story. The support we have received over the last year has been nothing short of amazing, allowing us to exceed our initial funding goals and offer such a significant grant amount while still in our first year. Thank you for your support, and stay tuned as we will gear up for our one-year anniversary!
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The Cute Syndrome Foundation

PO Box 842 Ozark, MO 65721​
The Cute Syndrome is registered as a tax-exempt organization under IRS section 501(c)(3).
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Our tax identification number is: 46-2699066.

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  • Home
  • About
    • About SCN8A
    • About Us
    • Partner Organizations
    • Volunteers
    • Sponsors
    • 2021 Annual Report
  • Families
    • Caregiver Support
    • Join our SCN8A Community
    • SCN8A Warriors
    • Educational Videos
    • Reference Guide
    • Resources
    • Shareable Graphics
  • Events
    • Annual SCN8A Clinician, Researcher, and Family Gathering
    • Researcher Roundtable
    • Awareness Day
  • Research
    • Clinical Trials
    • Research Grants
    • SCN8A Registry
  • Donate
  • Contact
  • Blog
  • Shop