It may sound a bit odd, but currently one of the best hopes for finding safer, more effective treatment for PCDH19 Female Limited Epilepsy (FLE) is swimming around in a fish tank in Boston. It is a little tiny fish called a zebrafish that Dr. Annapurna Poduri of Boston Children’s Hospital is studying to help find treatments for PCDH19 FLE.
The Cute Syndrome Foundation is on board to help this research happen by committing $25,000 to support Dr. Poduri's promising research. We have an anonymous donor who has signed on for a $10,000 matching grant in honor of our first anniversary to help us raise these funds. Help us reach our goal of $25,000 for this research. Read more about the research we are helping to fund here.