The Cute Syndrome Foundation: SCN8A Epilepsy Support, Awareness, and Research
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The Cute Syndrome attends the PCDH19 World Conference in Rome

12/22/2018

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TCS's partners Insieme per la Ricerca PCDH19 (Together for PCDH19 Research) held their second annual PCDH19 World Conference. TCS was very pleased to attend this important event this year where we learned so much about the current research into PCDH19 happening around the world. We heard papers from leading researchers around the world at the conference and had the tremendous opportunity to speak with many of them at length about the future of PCDH19 research, potential collaborative efforts in gathering data about this disorder, and how best to maximize our results in granting funds. You can read more about the conference speakers and their papers here. 

We are so grateful for the hard work our partners did to bring all of these researchers together to help our girls!
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The Cute Syndrome Foundation

PO Box 842 Ozark, MO 65721​
The Cute Syndrome is registered as a tax-exempt organization under IRS section 501(c)(3).
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Our tax identification number is: 46-2699066.

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  • Home
  • About
    • About SCN8A
    • About Us
    • Partner Organizations
    • Volunteers
    • Sponsors
    • 2021 Annual Report
  • Families
    • Caregiver Support
    • Join our SCN8A Community
    • SCN8A Warriors
    • Educational Videos
    • Reference Guide
    • Resources
    • Shareable Graphics
  • Events
    • Annual SCN8A Clinician, Researcher, and Family Gathering
    • Researcher Roundtable
    • Awareness Day
  • Research
    • Clinical Trials
    • Research Grants
    • SCN8A Registry
  • Donate
  • Contact
  • Blog
  • Shop